Diabetic Eye Disease Priority Setting Partnership (PSP)

The Diabetic Eye Disease in Low- and Middle-Income Countries Priority Setting Partnership (PSP) will work with patients, carers, and healthcare providers to identify uncertainties about the prevention and management of diabetic eye disease in LMICs. Learn more about the project below.

The overall goal of this initiative is to improve the well-being of people at risk of vision loss from diabetes in low- and middle-income countries – from day-to-day management of the condition, through to obtaining the eye health care needed, when it’s needed, and where it’s needed.

We are working with the James Lind Alliance to find out which top ten questions about diabetic eye disease in low- and middle-income countries we currently don’t have answers for. This way we can make sure we’re addressing the right questions to help us achieve our goal.

Diabetic retinopathy is a complication of diabetes that affects the eyes and can lead to blindness.
One in three people with diabetes have diabetic retinopathy.
Vision loss from diabetes can be prevented or at least managed.
Still, an estimated 146 million people around the world have diabetic retinopathy – of these, 43 million have an advanced form of the disease.
More than 8 in 10 people at risk of vision loss from diabetes live in low–and middle–income countries.

We need the input of people from low- and middle-income countries who have direct and personal experience of diabetes or of eye health problems caused by diabetes. This could be someone who has diabetes, a family member or carer who looks after them, or a healthcare professional.

We will firstly ask patients, carers, and healthcare professionals from different countries around the world what they think the most important unanswered questions are. We will do this using an online survey and through interviews.
Secondly, we will ask patients and healthcare professionals to rank these questions according to which ones they think are the most and least important.
Thirdly, we will take the topmost important questions to a meeting with patients and hospital staff to agree the top-ten. These top-ten questions will be used as information for research funders and researchers so that studies can focus on the issues that are most important to patients and clinicians.

In this way, this project will aim to find answers to the most important research questions in diabetic eye disease care across the world so people can make the best decisions about care based on evidence.

For more information, visit the James Lind Alliance page for this project.

PDF links

English Diabetic Eye Disease Survey PDF
English Diabetic Eye Disease Focus Group Participant PDF

Steering Group

View our Steering Group of Diabetic Eye Disease in LMICs Priority Setting Partnership.

Access the online surveys now

English

Amharic

Nepali

Swahili

Learn more in other languages

The following videos and PDFs help explain what the initiative is about and encourages participation in Amharic, Nepali and Swahili.

01 Amharic Diabetic Eye Disease Survey
02 Amharic Diabetic Eye Disease Focus Group Participant

The following video features Dr Alemayehu Woldeyes, Medical Director at Go-Far Vision Specialized Eye Clinic, Ethiopia.

01 Nepali Diabetic Eye Disease Survey
02 Nepali Diabetic Eye Disease Focus Group Participant

The following videos feature Dr Raba Thapa, Consultant vitreo-retina specialist at Tilganga Institute of Ophthalmology, Nepal and Mr Dhiraj Adhikari, Ophthalmic Officer of District Community Eye Centre Bhaktapur, Nepal.