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Prevent Blindness Invites Public to Join the Glaucoma Community

Published: 12.01.2021
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Prevent Blindness provides variety of free resources, educational tools in support of January’s National Glaucoma Awareness Month —

 CHICAGO (Dec. 16, 2020) – Today, there are more than an estimated 3.7 million older adults in the United States with glaucoma, according to the report, “Future of Vision: Forecasting the Prevalence and Costs of Vision Problems.” In an effort to help save vision from glaucoma, Prevent Blindness, the nation’s oldest voluntary eye health organization, is joining with other leading vision and eye health groups in declaring January as National Glaucoma Awareness Month.

Glaucoma is an eye disease that causes loss of sight by damaging a part of the eye called the optic nerve. This nerve sends information from your eyes to the brain. When glaucoma damages the optic nerve, patches of vision may become lost, usually side vision (peripheral vision). Most sight loss from glaucoma is gradual, which is why it is often referred to as the “Sneak Thief of Sight.”

According to the National Eye Institute, women account for 61 percent of glaucoma cases. Additionally, black Americans age 40 and older are at the highest risk of developing glaucoma. By age 69, nearly six percent of black Americans have glaucoma, with the risk rising to nearly 12 percent after age 80. The Centers for Disease Control and Prevention states that because Hispanics and Latinos are the largest and fastest-growing minority group in the United States, by 2050, half of people living with glaucoma will be Hispanic or Latino.

To help educate the public on glaucoma, including risk factors, symptoms, treatment options and more, Prevent Blindness, in partnership with Responsum Health, has launched the new resource, “The Glaucoma Community.” This comprehensive resource, accessible online or through the mobile app, provides users with a variety of features including:

  • A personalized Newsfeed
  • A Community Chat function
  • Dedicated Facebook page at: https://www.facebook.com/glaucomacommunity
  • Glaucoma content in seven different languages
  • A Patient One-Sheet, which allows patients to easily collect, maintain, and print their key medical information in a secure format.
  • Access to extensive patient resources, including financial assistance programs and glaucoma support groups.

In addition to volunteers from Prevent Blindness, the Content Advisory Council for The Glaucoma Community includes representatives from the BrightFocus Foundation, National Medical Association (NMA) Ophthalmology, and The Glaucoma Foundation. The Glaucoma Community was made possible by a grant from The Allergan Foundation.

“The Glaucoma Community was designed to provide the public with multiple tools to help save sight from one of the most prevalent eye diseases in the world,” said Jeff Todd, president and CEO of Prevent Blindness. “As the New Year unfolds, we encourage everyone to make a strong commitment to their vision health by making an appointment with an eye doctor as soon as possible. By detecting and treating vision problems early, including glaucoma, we can help protect the precious gift of sight.”

For those in need of financial assistance, “The Glaucoma Program” from the American Academy of Ophthalmology’s EyeCare America, provides a glaucoma eye exam at no cost to those who are eligible and uninsured. For information on additional financial assistance programs in English or Spanish, including Medicare coverage, visit https://preventblindness.org/vision-care-financial-assistance-information/.

For more information on glaucoma, including factsheets (available in English or Spanish), and sharable infographics, visit preventblindness.org/glaucoma.

 

 

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Prevent Blindness is declaring February as Age-related Macular Degeneration (AMD) and Low Vision Month in an effort to provide education and various expert-approved resources to the public and professionals. This year’s AMD and Low Vision Month is generously supported by Gold Sponsor EyePoint, Inc.

According to Johns Hopkins Medicine, AMD is the most common cause of severe loss of eyesight among people 50 and older. And, about 4 million Americans live with low vision, which is defined as chronic visual impairment that cannot be corrected with glasses, contact lenses or medical treatments.

AMD affects the central part of the retina called the “macula.” When AMD damages the macula, the center part of a person’s vision may become blurred or wavy, and a blind spot may develop. Early detection and treatment of AMD is key to helping to prevent significant vision loss.

Two types of AMD include:

  • Dry- The most common form of AMD, dry AMD, is caused by the appearance of small yellow deposits called drusen, which form under the retina. These are accumulated waste products of the retina, which can grow and stop the flow of nutrients to the retina. This may cause the retinal cells in the macula that process light to die, causing vision to become blurred. This form of the disease usually worsens slowly. An advanced form of dry AMD is called geographic atrophy.
  • Wet- Wet AMD generally causes more rapid and more serious vision loss. In this form of the disease, tiny new blood vessels grow under and into the retina. These blood vessels are fragile and often break and leak, causing a loss of vision.

“As our population ages, the number of individuals impacted by AMD continues to grow. Many will face difficulties doing the things we sometimes take for granted, such as reading, seeing faces, and driving,” said Jeff Todd, president and CEO of Prevent Blindness. “Our robust collection of resources on AMD and low vision are intentionally created to help minimize vision loss and maintain independence for those impacted by AMD while providing effective tools to the public and providers on ways to save sight.”

As part of AMD and Low Vision Month, Prevent Blindness offers the free AMD GuideMe app. This resource provides a customized overview of AMD along with a tailored resource list and suggested steps to help save sight from the eye disease specific to the individual using the GuideMe app. Prevent Blindness offers additional educational resources including fact sheets and shareable social media graphics in English and Spanish, and dedicated webpages.

New this year, as part of the Prevent Blindness ASPECT Patient Engagement Program Member Spotlight Series, graduate Laurie S., shares her experience with AMD, including her family history with the eye disease, how it impacts her daily activities including the ability to read music, and the importance of support groups “Age-related Macular Degeneration: Laurie’s Story.”

Videos in the Prevent Blindness Focus on Eye Health Series include:

  • “Age-related Macular Degeneration (AMD) and Low Vision,” featuring W. Lloyd Clark, MD, Palmetto Retinal Center, and Assistant Clinical Professor of Ophthalmology at the University of South Carolina School of Medicine.
  • “Low Vision,” featuring R. Tracy Williams, OD, FAAO, Executive Director at Spectrios Institute for Low Vision, Clinical Professor of Ophthalmology, Loyola University and Adjunct Professor, Illinois College of Optometry. Dr. Williams is also a former Prevent Blindness Board of Directors member.
  • “Vision Impairment and Mental Wellness,” with AMD patient Dr. Connie Hills, psychologist, consultant and speaker.

The Prevent Blindness “Living Well With Low Vision” program provides useful information to those with low vision, their care partners and healthcare professionals. Content includes self-help guides, resources for vision loss and mental wellness, information on clinical trials, and much more. Living Well With Low Vision is supported by grants from Amgen and Genentech.

For more information on AMD, please visit PreventBlindness.org/amd. For information on geographic atrophy, please visit PreventBlindness.org/geographic-atrophy.
And, for more information on Living Well With Low Vision, or other general eye health information, please visit lowvision.PreventBlindness.org.

For a listing of organizations and services that provide financial assistance for vision care in English or Spanish, please visit https://preventblindness.org/vision-care-financial-assistance-information.