While setting up my slit lamp, a blind man walked in, holding a 2month old baby; and said, ‘doctor! I heard you over the radio talking about glaucoma in children; I think my child has the kind of eyes you described! Big, grey, blinking and tearing excessively especially on exposure to light! I’m blind because of parental ignorance, both eyes plugged off due to pain; I’m now knowledgeable and won’t let it happen to anyone. My daughter will be my sight even though I am blind’
After evaluation under anesthesia, primary congenital glaucoma was confirmed. She had a successful surgery and today she is 5years old with clear corneas, normal pressures and a visual acuity of 6/6 in both eyes and doing great in school.
In Cameroon, prevalence of blindness is about 0.5% 1,2, Glaucoma being the second most common cause. (19.7%) and 3rd leading cause in children(10%)2.
Factors accounting for poor prognosis of congenital glaucoma in Cameroon include:
Patient factors: lack of awareness and poor eye health education; thus, people don’t seek help.
Poor socioeconomic background where healthcare financing is out of pocket means patients don’t seek care unless symptoms are unbearable.
Cultural and religious beliefs and practices push most to believe eye diseases are spiritual, therefore the quest for traditional doctors and ‘prophets’
Poor collaboration amongst eye/health care personnel with late or little referals.3
Lack of expertise and equipment for early diagnosis and treatment, poor distribution of eye care personnel (high concentration in cities).
Bad roads, insecurity means poor accessibility.
Is health education for early diagnosis and treatment the key?
ABII Foundation, Bamenda, is setting up a system that takes into consideration these challenges to facilitate early diagnosis, affordable care through a community-based approach. Azah regained her sight because her father was made aware of the symptoms of glaucoma and she presented early.
Unfortunately, we see many children presenting late and that usually results in poor outcomes even after surgery.
What is needed
Sensitization through active participation of village and religious heads, midwives, ANC nurses, and teachers who are often the ‘first contact’ will lead to early recognition and referral. Behavioral changes and support groups. We need to know the importance of routine eye checkups even in the absence of symptoms. The government needs better reconstruction of hospitals and needs to equip them (ophthalmoscopes, Perimeters, OCT, lasers, tonometers, etc.) to be able to address early years ophthalmic conditions and ensure easy access to these services.
An organized referral system, Human resource development, task shifting with enhanced supervision has proven useful (4).
Eye care inclusion in basic education curriculum, support to community and school outreach eye care programmes are important.
Sensitization, early diagnosis and treatment with routine eye check up, for all from birth will avoid Glaucoma stealing our sight silently and turning our light into darkness!
1.prevalence of visual impairment in Fundong DISTRICT
OYE J, Mactaggart I,Schmidt, E, Tamo V, Okwen M,, Sept 2017, Ophthalmic Epidemiology
2.Andre O et al, ‘prevalence and causes of blindness at a tertiary hospital in Douala, Cameroon, Sept. 2011 clinical ophthalmology 5910:1325-31
3.Okwen m, Signe R, Macpella sm, mbibeh L, Cockburn L. professional collaboration for vision and healthcare in Cameroon. Afr vision Eye health. 2018;77?(1), a 434. https://doi.org/10.4102/aveh.v77i1.434
4.Okwen M, et al., Primary eye care skills scores for health workers in routine and enhanced supervision settings, Public Health (2013), http://dx.doi.org/10.1016/j.puhe.2013.10.007